A New Generation of ALS Researchers
March 9, 2026
Yentli Soto Albrecht is an MD-PhD student at the University of Pennsylvania who brings a unique perspective to the ALS community as a scientist, a physician-in-training, and a C9orf72 expansion carrier. After losing her father to rapidly progressive familial ALS in 2024, she redirected her work toward neurodegeneration research with a clear purpose: helping accelerate progress toward prevention and meaningful treatments for individuals and families facing ALS and FTD.
Yentli has quickly developed an ambitious and highly collaborative research portfolio focused on C9orf72-associated ALS and FTD. She now helps coordinate 11 international projects across seven countries, spanning disease mechanisms, biomarker discovery, therapeutic development, and prevention strategies for presymptomatic carriers. She also contributes to initiatives that strengthen research infrastructure and expand resources for the ALS community.
What stands out just as much as her scientific work is her leadership and generosity in connecting people. Yentli brings together academic teams, industry partners, and advocacy organizations to address gaps that can slow progress. She also remains closely connected to the community, participating as a presymptomatic research participant in observational studies herself.
Yentli’s drive, clarity of mission, and collaborative spirit are making a real impact.
Submitted by Pegah Masrori, MD, PhD
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